April 22 - 29, 2025
Get Involved: A Global Call To Action
We need YOU to help us make 2025 the most successful World PI Week yet. Here’s how you can take part.
Unite to uncover the true stories behind Primary Immunodeficiencies
Living with Primary Immunodeficiency can feel like an uphill battle against a misunderstood condition. The challenges extend beyond health, impacting daily family life, emotional
well-being and social connections.
However, knowledge is power. Understanding the condition helps you make informed decisions about your own or your loved-one’s health – navigating medical care and conversations with peers and professionals, to seek and foster support.
Share your story
We want to hear your stories of life with a Primary Immunodeficiency. You can support, motivate, educate and inspire others with your real experiences and photos.
Reach out to our team or use the hashtag #SeeTheUnseen #WorldPIWeek 2025 on LinkedIn, Instagram or Facbook.
Stay informed and share knowledge
Primary Immunodeficiencies are often undiagnosed, misdiagnosed or diagnosed late, leading to prolonged suffering life-threatening risks, repeat hospitalizations and increased healthcare costs.
Symptoms can be hidden and overlap with more common conditions. Effective treatment options are critical to addressing the underlying immune deficiency, improve healthcare outcomes and quality of life.
● Stay informed about the latest diagnostic tools and warning signs.
● Share knowledge to educate peers, patients and the public.
● Advocate for improved resources to support earlier diagnosis and access to treatment
Advocating for system change
Primary immunodeficiencies present global challenges, including early diagnosis, access to appropriate treatments, and the availability of adult immunologists. Solving these issues goes beyond making treatments available. Many patients and their families struggle with inadequate healthcare coverage, where diagnostic tools and essential treatments are often not covered by insurance or national healthcare systems, leaving individuals without the care they need.
By prioritizing Primary Immunodeficiencies in the healthcare agenda and taking decisive action now, you can help create a system that supports every individual affected by these complex conditions.
● Learn about the unmet needs to effectively shape policies and diagnostic guidelines.
● Champion increased funding for research, diagnostics and support services.
● Foster cross-sector collaboration to create a unified, impactful response.
Unite to uncover the true stories behind Primary Immunodeficiencies
By understanding Primary Immunodeficiencies, you can make a
world of difference now and in the future.
● Start by learning the real signs and symptoms to recognize potential cases.
● Share the facts to combat misinformation and break the stigma.
● Foster open conversations to support the people living through these experiences
