Bringing about change together

Campaign News and Updates

Here you’ll find all the latest news from the World PI Week team. Check back regularly for campaign updates, launches and for more information on our exciting initiatives. 

See the Unseen: Introducing Our 2025 Manifesto

See the Unseen: Our Campaign Manifesto

For too long, the complexities of Primary Immunodeficiencies have shaped lives in ways the world often doesn’t see. Too many remain undiagnosed and without the care they need, trapped in a cycle of uncertainty. It’s time to change that – to make the unseen, seen.

We must unite to uncover the hidden realities of these conditions. Through education, we can turn understanding into action and action into progress. 

By raising awareness, we can bring these conditions – and the people behind them – into the light.

With real stories, we can transform recognition into meaningful change, leading to improved diagnosis, treatment, and care for everyone living with Primary Immunodeficiencies.


Thanks to IPOPI members for sharing their stories and photos to help us develop this important campaign rooted in their truths